At 930am this morning my mother’s help called me panicking saying that she’s not feeling well and has a fever. I ran downstairs to see mom in her wheel chair soaked in sweat and breathing very heavly, I immediately checked her blood pressure and blood oxygen levels only to see her BP was around 200/130 !! I callled the paramedics to ask for assistance and they advised me to let her rest at 45 degrees and legs straight. Thankfully it helped and her BP went to normal levels, once they arrived and did a full check up said she seems fine and the only explanation is either 1.lack of sleep 2. Stress 3. Food. He also recommended we do a kidney and liver check up just to make sure everything is fine. Thankfully her condition stabilized a bit and she had her breakfast and is resting now. Its been a really rough morning. . .
Today, thankfully has been a good day for mama overall, she ate well and even said her first word for over 10 days! I was with her and kept telling her how about you say maamaa. .maamaa! And she did it . She said mama, baba, and no. She also took 5 steps (assisted). So baby steps, but progress. Thank you god.
Its been about a year and half since i last posted anything here. It’s mostly been the same routine for mama during the past year or so. She has her schedule of appointments: 1)Speech Therapy 2) Physiotherapy 3)Occupational Therapy 4)Personal trainer at home and 5)Neurologist. Usually these kept mama busy and always on top of things, and i think having a busy schedule has really helped her condition maintain itself.
During the past month or so, my family and myself noticed a decline in mamas overall well-being, her meals are taking longer (around 2-3 hours), speech is barely audible, and movement has regressed. Last week she required a minor procedure (colonoscopy), which needed a full cleansing and flushing of the body’s wastes and toxins. After the colonoscopy, she has become very tired, weak, and barely moving. Thankfully shes eating her meals, medicine, and passing stool which is the most important thing as its been causing her difficulty recently.
God bless mama shes is a strong strong soul, with a huge heart. Yesterday we celebrated my parents 38th anniversary and she smiled when i reminded her. Mama always emphasized on special occasions (bday’s, anniversaries, etc). Thats why i always try to follow her foot steps and whenever there is an occasion I personally take the initiative to make sure everyone is celebrating, because that’s what she would want. I miss the days she used to call me and nag over and over and over about getting a cake for my brother or sister or wife etc, etc, etc. She hasnt spoken for over a week and the only way of communication is through hand signals (Thumbs up-Yes or Index Finger -which means no). Its been tough on all of us, but the good news is that every time i ask if shes in pain, she says no. She hasnt lost her sense of humor also, this morning i asked her how was ur sleep last night, she pointed her index finger, i asked her why?
1)was the pillow bothering you? Index Finger
2)was the blanket too heavy? Index Finger
3)were you hungry? Index Finger
4)were their loud sounds outside? Index Finger
5)were your pajamas uncomfortable? Index Finger
I ran out of questions so i asked her… Did you miss me?? and She gave me a Big Thumbs Up!
The past week has been very tiring for all of us, i haven’t slept properly or been myself. She has a chest appointment now, and another appointment in a few days for Botox (which helps her relieve her muscles and eat better.) Hopefully,
Mama we all love you.
progressive supranuclear palsy 